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Information will empower parents of disabled children Dear Editor: Parents have a right to know what is going on with their children. Unfortunately under current state law, parents of developmentally disabled children aren't able to access important information about their children who are being treated in state facilities. Recently a 13-year-old boy with severe autism died after being improperly restrained by workers at a state-run facility near Albany. At the time of his death, his parents were attempting to obtain information about an earlier abuse incident at a different facility. Here on Long Island, the parents of Nancy Bunter, a developmentally disabled adult, have been unsuccessfully attempting for six years to uncover information about an injury that Nancy sustained while in the care of a state facility. Children with severe disabilities may literally not have a voice to tell their parents what is wrong. In those instances, their parents must speak for them. But if parents don't have information they can't advocate for their child. That's why I am sponsoring legislation in the State Senate that would allow the parents or guardians of children and adults with developmental disabilities access to information about any investigation of abuse or injury of their child while in the care of the state. As parents, they have a right to know.
Charles J. Fuschillo, Jr. New York State Senator
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